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Ehlers-Danlos Syndrome

May is Ehlers-Danlos Syndrome Awareness Month, and at Highett Podiatry, we’re helping raise awareness about how EDS can affect foot health, mobility, and everyday comfort.

What is Ehlers-Danlos Syndrome?

Ehlers-Danlos Syndrome (EDS) is a group of inherited connective tissue disorders that affect the body’s collagen. Collagen provides strength, support, and stability to tissues throughout the body, including ligaments, tendons, skin, muscles, joints, blood vessels, and internal organs.

The most common type is Hypermobile EDS (hEDS). Symptoms and severity vary, but many people experience musculoskeletal problems that affect daily function and mobility.

Common Symptoms of EDS

  • Generalised joint hypermobility (“double-jointedness”)
  • Frequent joint sprains, subluxations, or dislocations
  • Chronic joint and muscle pain
  • Fatigue and reduced endurance
  • Muscle weakness
  • Poor proprioception (reduced body awareness and balance)
  • Soft, stretchy, or fragile skin
  • Delayed healing or easy bruising

Associated Conditions

  • Postural Orthostatic Tachycardia Syndrome (POTS)
  • Chronic fatigue
  • Gastrointestinal dysfunction
  • Headaches and migraines
  • Pelvic instability
  • Anxiety related to chronic pain or recurrent injury

Because connective tissue is found throughout the body, EDS can affect multiple systems and may require management from several healthcare professionals.

How Does EDS Affect the Feet?

The feet and ankles are commonly affected in people with EDS because they contain numerous joints, ligaments, tendons, and stabilising muscles that rely heavily on connective tissue support. When these structures are more elastic than normal, the feet may become unstable, inefficient, and prone to overload injuries.

Flat Feet and Arch Collapse

  • Flat feet (pes planus)
  • Foot fatigue
  • Heel pain
  • Arch pain
  • Stress through knees, hips, and lower back
  • Difficulty tolerating prolonged standing or walking
  • Children may appear clumsy, tire quickly, or avoid activity

Ankle Instability and Recurrent Sprains

  • Chronic ankle pain
  • Swelling
  • Balance difficulties
  • Tendon overload
  • Fear of movement or exercise

Increased Risk of Overuse Injuries

Proprioception and Balance Difficulties

  • Falls
  • Trips
  • Recurrent injuries
  • Difficulty on uneven ground

How Can Podiatry Help?

At Highett Podiatry, treatment focuses on improving stability, reducing pain, and helping patients remain active safely.

Early intervention can reduce long-term strain on the feet and lower limbs while improving comfort and confidence with movement. If you or your child experience ongoing foot pain, recurrent sprains, hypermobility, or fatigue, our team is here to help.

Frequently Asked Questions (FAQ)

A podiatrist is a good starting point, whether or not you have a confirmed diagnosis. At Highett Podiatry, we can assess your foot mechanics and put together a management plan tailored to your needs, including referral to the appropriate specialist if required.

Shoes with a firm midsole, low heel, and secure fastening (laces or straps) generally offer better stability than flat or slip-on styles. Your podiatrist can advise on specific features based on your foot type and symptoms.

Most types of EDS are inherited. If you’ve been diagnosed, it’s worth raising this with your GP, as family members who experience hypermobility, recurrent sprains, or chronic pain may also benefit from assessment.

Yes, and staying active is generally encouraged. Low-impact activities like swimming, cycling, and Pilates are often well-tolerated. A podiatrist can help with load management and orthotic support to keep activity safe and comfortable.

Issues are often first noticed in childhood or adolescence, particularly as activity levels increase. In children, signs may include flat feet, frequent ankle sprains, or leg pain after activity. Early assessment can help prevent problems from worsening over time.

ALWAYS CONSULT A TRAINED PROFESSIONAL

The information in this resource is general in nature and is only intended to provide a summary of the subject matter covered. It is not a substitute for medical advice and you should always consult a trained professional practising in the area of medicine in relation to any injury or condition. You use or rely on information in this resource at your own risk and no party involved in the production of this resource accepts any responsibility for the information contained within it or your use of that information.

CLINIC LOCATIONS

Highett Clinic
Shop 1 & 2, 407 Highett Road
Highett VIC 3190

Mentone Clinic

7–9 Como Parade West
Mentone VIC 3184

No Referral Necessary

Saturday & Sunday Closed

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